Merry Christmas!

Merry Christmas from Brooklyn and I. She has done wonderful! No seizures for over two weeks. Her serum levels came back low, so they increased her zonisimide dose. She’s on two anti-convulsants, steroid and pepsid still. Your funds have gone towards her ongoing treatment (it’s pricey) and a little towards her bill. I am really…

We’re playing ball again!

Brooklyn is doing so much better this week. No seizures this week. Dr. Lane said she is doing well but seizures are a part of this disease recovery. That if they happen, I shouldn’t be alarmed. Its still really hard to watch your baby seize like that, and just have to sit by her and…